My Thoughts On “Trans Abled”

I can remember being in college, in hearing all the craze, about a woman who wanted to become paralyzed from the waist down. Link Here I remember scratching my head and thinking to myself this can’t be real, right? But I was truly wrong, it was real. I was made aware of the Psychological disorder called BIID, or body integrity identity disorder. 

B.I.I.D. according to the NCBI, is defined as: Body Integrity Identity Disorder (BIID) is a rare, infrequently studied and highly secretive condition in which there is a mismatch between the mental body image and the physical body. Subjects suffering fromBIID have an intense desire to amputate a major limb or severe the spinal cord in order to become paralyzed.

Now, as a person who has lived with an actually disability (cerebral palsy) for 34 years. It is extremely difficult for me not to take a stand against this. For the simple reason that I didn’t have a say in the matter of being born in the matter that I was. There was no psychological imbalance or trauma that caused me to be born with such a condition. But rather complications in the birthing process and actually trauma to my brain.

Cerebral Palsy is not the worst thing in the world, but it does have its taxing days, both on my mind and emotions. And yes, some days I wish I could walk, run, and live like everyone else. Somedays I wish that I could have a new body, but never could I ever have imagined the new momentum of wanting to be “Trans-Abled”

Where people actually want to not have use of their eyes, legs or even arms. And the torture in which they put themselves through. In the name of achieving such goals is down right disgusting and frankly demonic. Forever, there are doctors and seemingly “medical professionals” who are willing to aid their patients in the process! And if not done by a medical professional, then physical harm is done by the person seeking those results.

As a society, what is happening to us? And are we actually willing to accept this as the new social norm? Furthermore, if we are willing to accept this as a new social norm, provided more and more people actually want to move into this supposed “life style” are we actually fighting for human flourishing? No, we are are not fighting for human flourishing, rather we are accepting a deep form of human denigration.

As human beings we should be pushing people with mental illness and various disorders, to thrive and be at peace with themselves at some level. This also goes for medical professionals as well, as most already are, but there’re also quacks everywhere you go. I don’t meant to sound in-compassionate to these people that have this mental disorder, because they’re people too.

But no, you don’t and shouldn’t have the right just to cut your own arm off, simply because you want to be called “One arm Jack” which is a real story too. This is heart breaking, these people need deep compassionate mental care. For no real human being should set out to accomplish the goal of becoming disabled in various ways just to feel whole.

That in my estimation is the very definition of Ab-normal. I get that a lot of people feel trapped in their own bodies, but the answer is not harming yourself to accomplish a sense of people or even taking ones life, no way no how. Finding a sense of inner peace within oneself can be an extremely daunting journey, I know it has for me.

And I mentioned earlier, having CP is not the worst thing in the world, but there are days when it sucks and my body is in great pain. And yes, the days where I would like to experience what it is like to be like every other person, they come too. But I have done the hard work to have a sense of peace with myself and my maker.

I dealt with the shame of my right hand, the scars on my body and so on. And though my struggle is not the same of one that suffers from BIID. I can honestly tell you that I am at peace with myself, I still struggle, but I’m very okay with the body that I have been blessed with.

The same, I believe can be found for someone that suffers with BIID, to find true mental healing and restoration. It may be a long process, but it is possible, it takes the care and compassion of mental health professionals to help them work through a lot of layers and change the way we think.

Though I profoundly and disagree with the desire for one to become disabled, in any sense. Does not mean that I love or care for them any less. These people still have the image of God on them, and  whether they know that or not. That is their truest self of identity. And from that everything else follows.

They have such worth and value, and they need people who will show them that, not just cave to their desires.

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The Gift of Your Child

The following entry is a topic that has long weighed upon my heart, I do not wish for anyone to feel condemned or even shamed in the process of reading this. If anything, it is my hope and prayer that your heart and mind might see things in a fresh perspective and that you may sense a jolt in your spirit, and even a fresh perspective on the life your leading.

I can’t imagine what is was like, for my parents to hear from the doctor that I would be born with cerebral palsy (CP). The doctor gave my parents a lot of double speak, in that, one hand I would probably grow out of the condition, which never ever happens. If I didn’t grow out of it, then, according to the doctor, I would be dependent on others to help me live my life and I wouldn’t be able to do much of anything on my own.

You don’t have to be a pattern in the present moment, to get an idea of how that made my parents feel. My mom always tells me this story, that she grabbed this doctor by his lab coat and gave this doctor a piece of her mind. Apparently, in doing this, that caused this very small hospital on lock down. Furthermore, my mom would tell me about how, she would walk in the snow, to the hospital to make sure I was fed and gained the weight that was needed to be discharged from the hospital.

There is only one word to describe this: Love. Was it stressful and nerve racking? Yes, without question. I can only imagine that there were times where my parents felt frustrated and just needed a moment to breath and gather themselves back up. God knows, that we are only human and have our breaking points. Yet is was love, for my dad to take me to each physical therapy session and doctors appointment. It’s love, for my dad to teach me martial arts and how to be strong as a man.

Now, I have always tried to be as sufficient as possible,  but there’re a few things in life which have always got in the way. 1) driving and 2) cooking, I have attempted to learn to drive before, and will try again. The problem becomes, in having a bad startle reflex and taking a bit of time for my body to wake up and regulate its self in the morning. As of now, wisdom tells me that it’s easier to air on the side of caution. I would hate to be behind the wheel, and get startled by a loud noise, gun through the intersection and either being badly hurt myself or injuring someone else.

Cooking, it’s something I can do for myself, however the kitchen in my home is not the best set up for me. But I know that this arrangement is only temporary. The point being, is I know that things get stressful for my parents. Because, as I said earlier, their human too.  Yet, knowing that I am dependent in some ways and as a person with CP (or any other disability one wants to fill in the blank with).

The idea of being a gift or blessing, gets replaced with the word burden or thinking that we are dead weight. Now, let me lay before you that, parents that vocalize any sort of frustration. They don’t actually mean it, does it feel good? No, it doesn’t, in fact it hurts and cuts down to the bone if we don’t learn how detach ourselves from the moment, and cling to truth.

The truth is, our parents just might be having a bad day, should parents vocalize such frustration in front of their sons or daughters? Probably not. The reality is, it’s not good for anyone. I think that there should be times for parents with special needs children to vent, but in a healthier context. Not directly in front of your son or daughter.

Once again, to those of us who have CP or any other disability. Remember the truth, you’re not a burden, but a joy. Who has unique gifts and talents to offer the world. It’s important that we have a forgiving and grace filled spirit. Because the people around us, who love of the most will have bad days. And it’s important to know who we really are, to smile and forgive.

Parents, again, God knows you will have bad days. God knows that you will say things that you don’t mean. I think is key to remember, that if your son or daughter could actually drive, cook or do X, Y or Z for themselves they actually would. I m deeply thankful, for all my parents and family has done to help me get to where I am in life.

And if I could drive and do a few other things for myself, I would gladly do so. But in this current moment, things are as they are. Yet that does not mean, that I stop trying to improve myself to be as sufficient as possible. Lastly, and I don’t mean to pull at your heart strings, but always remember what it was like to see and hold your child for the fist time. The love and joy you felt for them in that moment, is still there even when you have a bad day.

Sons and daughters, the same goes for us, the love our parents does not change, simply because of one day. Always be kind, loving and gracious.

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Do What You Were Meant To Do.

“Don’t ask what the world needs. Ask what makes you come alive, and go do it. Because what the world needs is people who have come alive.”

― Howard Thurman

Finding your soul purpose, is not a exploration through outer space. I repeat:

Finding your soul purpose, is not a exploration through outer space.

What does this mean?

It means that God has endowed us all with things that we are passionate about, and talented out. What ever those things are for you, are the things that I truly believe that you should be pursuing.

It doesn’t matter if its painting, web design, clothing, public speaking, mentoring, coaching or something else. If we are not doing the things we love in some fashion. We are living a horrible existence.

As a society, we are caught in the 9-5 trap, working for our bank accounts. Now, if you like what you’re doing, good. Keep doing it. But I feel that most people hate what their doing and as such they are dying on the inside. Living for the Fridays and drinking some beer… Not that that’s bad at all.

But I just think that we could be living a more meaningful existence… You have to work an odd job to make ends meet. But to not do something that makes you come alive, is utter foolishness.

Write down what makes you come alive, make a plan and go do it.

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Remembering Chester Bennington

I’ll never forget being a teenager, lying there in my bed watching MTV, when MTV was actually MTV. Meaning that they actually played good music videos. It must have been early morning I remember seeing Linkin’s Parks video for the song One Step Closer.  I was hooked from the first sound of the guitar, the break down and the perfect hybrid rap Rock vocals. The lyrics hooked me as an angsty teen. The lyrics were speaking to me in a way nothing else could.

I was a fan and will always will be. There was not a LP album that I was not a fan of. To be quite honest though, it was the lyrical depth that drew me in. The fact that the band was armed with a great live show was even better. I had never gotten the chance to see the band live, but I remember seeing them live on a show called Reverb Nation. There was so much emotional connectivity with the crowd, it was all so intriguing and inspiring to me.

To think that someone like Chester, or any member of the band could command such attention. When ever I was sad, depressed or angry it would be linkin park that I went to the most. The interesting thing is though, even through Chesters heavy, dark and even hopeful lyrics. I never truly connected that fact that he struggled with depression or mental illness. In my young mind at the time, I thought he was only telling stories of people that he knew.

There was no way he could be depressed right? I mean he was a world wide celebrity and had everything it seemed. That the was the younger, less wise part of myself. Now that I am bit older, I realize that it is truly possible to have everything and feel like you have nothing at the same time.

In my own journey with depression and anxiety, it was the lyrics of Chester B that gave me the room I needed to give voice to what I was feeling on the inside. I was never blessed with the chance to meet Chester, and tell him thank you for his words. And that I in some ways considered him a friend.

On a personal level, I often feel so up and down. Happy one moment and either want to scream or cry the next. I have had a handful of psych professors tell me that life, for most is very up and down or much like scribbling on a piece of paper. But thats never been a soothing or satisfying response for me.

The more I listen to the lyrics of Chester, the more I sense that he was truly crying out. Duh right? As a psychology major though, I have learned to pay more attention and see more deeply into a person. Are they truly happy when they smile or is there more going on below the surface?

Better yet, are we happy in a public setting and then fall apart behind closed doors? It’s almost been a year since his passing, and I honestly cannot believe that he is gone. I keep waiting for some FB article to pop up saying that he is alive and well, much like 2 pac. ..

But I guess that a big part of me is still in denial, that he is truly gone. All I know is that, we cannot afford to keep losing people this way. Regardless of what we believe about life. We must be willing to ask and have uncomfortable conversations, about how and where we are at in life.

We have to be willing to say **** the stigma behind talking about depression and suicide, for it is the only way to break free. We have to be willing to say enough is enough.

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