The following entry is a topic that has long weighed upon my heart, I do not wish for anyone to feel condemned or even shamed in the process of reading this. If anything, it is my hope and prayer that your heart and mind might see things in a fresh perspective and that you may sense a jolt in your spirit, and even a fresh perspective on the life your leading.
I can’t imagine what is was like, for my parents to hear from the doctor that I would be born with cerebral palsy (CP). The doctor gave my parents a lot of double speak, in that, one hand I would probably grow out of the condition, which never ever happens. If I didn’t grow out of it, then, according to the doctor, I would be dependent on others to help me live my life and I wouldn’t be able to do much of anything on my own.
You don’t have to be a pattern in the present moment, to get an idea of how that made my parents feel. My mom always tells me this story, that she grabbed this doctor by his lab coat and gave this doctor a piece of her mind. Apparently, in doing this, that caused this very small hospital on lock down. Furthermore, my mom would tell me about how, she would walk in the snow, to the hospital to make sure I was fed and gained the weight that was needed to be discharged from the hospital.
There is only one word to describe this: Love. Was it stressful and nerve racking? Yes, without question. I can only imagine that there were times where my parents felt frustrated and just needed a moment to breath and gather themselves back up. God knows, that we are only human and have our breaking points. Yet is was love, for my dad to take me to each physical therapy session and doctors appointment. It’s love, for my dad to teach me martial arts and how to be strong as a man.
Now, I have always tried to be as sufficient as possible, but there’re a few things in life which have always got in the way. 1) driving and 2) cooking, I have attempted to learn to drive before, and will try again. The problem becomes, in having a bad startle reflex and taking a bit of time for my body to wake up and regulate its self in the morning. As of now, wisdom tells me that it’s easier to air on the side of caution. I would hate to be behind the wheel, and get startled by a loud noise, gun through the intersection and either being badly hurt myself or injuring someone else.
Cooking, it’s something I can do for myself, however the kitchen in my home is not the best set up for me. But I know that this arrangement is only temporary. The point being, is I know that things get stressful for my parents. Because, as I said earlier, their human too. Yet, knowing that I am dependent in some ways and as a person with CP (or any other disability one wants to fill in the blank with).
The idea of being a gift or blessing, gets replaced with the word burden or thinking that we are dead weight. Now, let me lay before you that, parents that vocalize any sort of frustration. They don’t actually mean it, does it feel good? No, it doesn’t, in fact it hurts and cuts down to the bone if we don’t learn how detach ourselves from the moment, and cling to truth.
The truth is, our parents just might be having a bad day, should parents vocalize such frustration in front of their sons or daughters? Probably not. The reality is, it’s not good for anyone. I think that there should be times for parents with special needs children to vent, but in a healthier context. Not directly in front of your son or daughter.
Once again, to those of us who have CP or any other disability. Remember the truth, you’re not a burden, but a joy. Who has unique gifts and talents to offer the world. It’s important that we have a forgiving and grace filled spirit. Because the people around us, who love of the most will have bad days. And it’s important to know who we really are, to smile and forgive.
Parents, again, God knows you will have bad days. God knows that you will say things that you don’t mean. I think is key to remember, that if your son or daughter could actually drive, cook or do X, Y or Z for themselves they actually would. I m deeply thankful, for all my parents and family has done to help me get to where I am in life.
And if I could drive and do a few other things for myself, I would gladly do so. But in this current moment, things are as they are. Yet that does not mean, that I stop trying to improve myself to be as sufficient as possible. Lastly, and I don’t mean to pull at your heart strings, but always remember what it was like to see and hold your child for the fist time. The love and joy you felt for them in that moment, is still there even when you have a bad day.
Sons and daughters, the same goes for us, the love our parents does not change, simply because of one day. Always be kind, loving and gracious.