SSI and Shame

I can remember the day my mom started the process, of applying for SSI for me over the phone. At the time, it didn’t occur to me that a monthly amount of money would be given to me, simply because of having cerebral palsy. “Cool!” I thought, the interesting thing is, however, is when I realized that I’d need to appear in front of a doctor to prove that cerebral palsy was not a made up reality in my life. So, my parents took me to see a local doctor, and it was as though the doctor took one look at me and said “yep, he has cerebral palsy”.

Don’t get me wrong, I was well aware that people take advantage of the system. It only seemed odd to me because I knew that in my heart the truth was being told. Before I knew it my first monthly check was in the mail and shortly after that, then came my very own bank account.

This was a really cool reality to me, because that meant that I could buy my own clothes, food etc. It was cool to have my own money and start learning how to be responsible with money. Yet, now being an adult who gets SSI. There is all too often a battle with shame over the reality. On one hand, I see that that money given each month is a blessing from God, that I and others should be wise with.

On the other hand, I have been met with a great deal of heat and push back, both from others like myself and even abled-bodied individuals. Both sides say with great passion “don’t you want more for your life!” The obvious answer is, yes of course, any person in a healthy frame of mind would want more for their lives. Sometimes society can be an extremely judgmental place, and to add to that, some simply cannot understand that some of lives simply haven’t turned out as planned.

Due to my startle reflex, it’s not safe for me to drive and so working your typical job is a challenge. And where I live, transportation services are pretty much nonexistent. As I result, I still try and make the most of the life that God has given me. Most of my time is spent as being an online personal trainer and nutrition coach online. Working with others like myself, beyond that I write books and blogs.
And you know what? I still don’t make enough money to get off SSI… But I know that deep down I’m doing the best that I possibly can. And I’m not giving up hope either. When the shame shows up, it can quickly turn into a heavy depression. Then defeating statements are whispered into my mind:

“No real woman would want you like this.”

“You’ll never measure up.”

“your life will never change.”

These are just some of the lies that hit me at times, and one of the main ways that I combat the shame. Is by remembering where my worth and value come from. And for that all stems in my faith in God. He says who I am. My worth in him and to him, is not based upon how much money is in my bank account. Or even how much that I accomplish in my life. If people cannot see your value as a human being, that has a lot more to do with them than it does you. It may be hard to believe in the moment, but it is true none-the-less. As I also mentioned above, do not give up hope, keep striving! Set goals, and as Jordan Peterson says “take aim at something”. Start small and work your way up to bigger things.
You may not be where you’d like to be in life, and that’s ok. You just keep pressing on toward the goal. Whatever that is for you. Will the battle with shame completely go away? Probably not, in fact there will be days when we feel completely defeated. But as long as there’s still breath in our lungs. There’s still room to fight.

How To Be A High Value Person: With a Disability

Lately I’ve been thinking about what it means, to be a person of “high value”, as it also relates to be a person with a disability. The term “high value” truly comes down to how you see and treat yourself. In truth, being assertive is something that has been a challenge for me my whole life. Sometimes the fear of speaking up about my belief on a given topic, causes me to fear the consequences. Either by offending someone or being viewed a certain way. Even in living with cerebral palsy, asking for things is tough because one does not want to feel like a burden. Maybe for you, it’s that and also how you see yourself. Perhaps you don’t take care of yourself as much, because on the inside you do not feel as though you are worth someone caring about. Whatever that may be, for any of us, here is a short list of things to become a person of a higher value.

One: you already are a person of high value because God has placed his image upon you. Which is the greatest blessing to ever be bestowed on human life.
Two: Take care of yourself, physically speaking: exercise in the way that you can, eat good foods that serve your body and not destroy it. And to a certain extent, present yourself with a good image.
Three: know your personal boundaries and do not allow to be crossed- by anyone.
Four: Guard your mind and heart, learn not to be over ran and dominated by every single though or emotion.
Five: Master your temptations, whatever they may be.

The Tug-Of War With CP

Living with cerebral palsy will now be, for me defined as a tug-of- war. What is meant by that, you ask?  On one hand, many times there is a peace inside me in regards to living with it. There isn’t so much the hatred of self that once was there. Having once despised myself and the God that gave my very breath to me. Now in my mid- thirties, most days there is honestly a love for having cerebral palsy. Why? Because this was one of the missions that God gave me, there’s avenues to relate to others like myself and not like myself. There’s avenues to relate to suffering and hardship. There’s avenues to completely blow people’s minds, with what my body can do physically, but also with the intelligence and other gifts that were endowed to me also. That’s most days for me, when I’m happy, content and smiling. And yet, it’s not in me to lie- some moments and days the hatred comes back.

When the ominous thoughts slip in the back door of my mind and say:

Hey! Its us… Those annoying voices in your head!

Were just hear to remind you what a failure you’re.

You got a dramatically late start in life and you suck because of it!

            No this is not me trying to add more drama than there needs to be, this is truly what it feels like on the inside. Yes, I’m 36 and still in my parents’ house, yes there’s plans to move out and be on my own. Thanks to Covid though, that got put on the back burner. But I’d be lying to you if there wasn’t an intense frustration. As though to think, that if maybe if there were a few different choices made, maybe my life would have taken a different direction? I’m not a hundred percent sure.

Within the current context, I’ve managed to author multiple books, become an online personal trainer/nutrition coach and even teach self -defense classes multiple times a week. Am I happy with that? Yes, I’ve even improved a lot with money, but again, there’s that voice inside me that says it’s still not good enough. That, there needs to be more and more and more. One of the biggest desires of my heart, is to meet a lovely woman, get married and have a family of my own. However, that same voice that reminds me that it’s never enough even says to me that no woman  will ever want me because of XY or Z. It sucks to feel that way, it’s like a dagger that resides in my chest. And yet, it’s not as though there is no value in myself or that there is nothing that I have to offer. That’s hugely not true- the reality is, those thoughts still find themselves making space in my life. And maybe it’s like that for you too? The two realities that help me fight on, is that God is in absolute control of my life and nothing happens without his divine say so.

            The other is knowing that there is immense value and worth inside me, regardless of whether or not others see it or not. That’s a powerful truth to know. It means that we don’t have to conduct our lives based solely on how others see or believe about us. That used to be me, and it was a miserable place to be. That also isn’t to say, that we shouldn’t care at all, what people think. We are social creatures, yet we must pick and choose who’s opinion we listen to and who speaks into our lives.  The point is, we need to value ourselves and we need to hold our heads high.

Lastly, each person is on there own path in life and it doesn’t matter who gets where and when. But that we learn, grow and have the courage to embark on where we think we are being led along the way.             

A Letter To A Fellow Warrior

The following post, is a letter that I wrote to a dear friend of mine, who also has cerebral palsy. Though much worse than myself. Like a lot of men with CP, he feels alone and wrestles with the desires. The point behind this letter, was to remind me of who he was, despite the circumstances that he found himself in:

Brother,
Thank you for your message, it truly meant a lot to me, in a few ways. In one regard, your struggles are my struggles. Not being able to leave the house much, work, feeling alone. Those are all things that my heart connects with as well. And as mentioned to you before, the battle is sometimes hourly and daily. I connect tell you how many times the thought has surfaced in my mind:
Is any woman ever going to love me for me? I know that questions must echo loudly in your mind, as it does many others with cerebral palsy and other disabilities, regardless of gender. Now, myself having only dated a few women, sometimes things just aren’t what we think their meant to be. I’m in no way trying to give you a platitude, it’s just a cold hard reality of life that we men need to learn to accept. With every interest or relationship, the question speaks out from my inner life: is this person the one that’s going to stay? And when I say stay, it’s the until death do us part way.
The great CS Lewis, was only married to his wife for a short time, before losing his beloved wife to illness. The very death of his wife, appeared that there was enough weight behind it to crush the very soul of Lewis. Think about that for a bit, he must have felt intense despair, and felt utterly alone in the universe. He very well might have had so heated conversations with God himself. I say all this, to share with you, that no matter how long a woman or even dog is with us, they were never meant to complete. Never. And shame on us humans to even believe that another person might actually make us whole.
I’ve known you awhile my friend, and I know you are a good man with an amazing heart. A man that actual has purpose, talent and immense value. The question is my brother, do you know that in yourself? Do you know what the creator of the cosmos thinks and believes of you? Do you know how madly he loves you? Do you know that he calls you friend and beloved? These realities, though they are true for all who are in Christ. They are in (in a sense) even more important to men like us, men like us who physically can’t drive. Men, who are good hearted men, with good intentions, and would like to leave a dent in the world and because of the severity of your disability and because you a bit heavier on the care of others. It makes things all the more challenging and difficult. The average person, would rage against our situations, and yes it sucks a lot. But you and I, belong to the king of the universe first and foremost. His son Jesus, made us his own before the foundation of the world. That should matter more than anything.
The other reason your message stuck out to me, was that it reaffirmed in me another of a mission in life, and that is other men like us. There’s many like you and me, who wrestle with the same thing, who cannot readily go out and be the typical man that some women want. I feel as though, God wants me to be a kind of coach, that helps men like us discover Gods mad love, to secure in themselves, learn to navigate the inner emotions of life and discover purpose/mission in life. My prayer for men like us, is that we would be sure of our standing with God, that we would live a stoic life, where we are not needlessly emotional and are ravaged by desire and that we are dependent on no one to fill our emotional, mental and spiritual cups. To be okay with being alone. Simply because you have a severity of CP, that leaves you in need of more personal care. Does not make you less of a man. Let me say that again my friend, you are not less of a man.
God has made you man, my brother, and as such you are a warrior poet. Though your body may not be able to be physically strong. Your mind and soul can be like a mighty fortress. You can learn to armor up and fight off the enemies attacks. God has given you a mind, and a mouth, you may not be able to use your hands very well, but you are smart and as such you can use the tools that you do have. Rather than being caught up in what you don’t. I must preach these truths to myself as well, daily, weekly and even hourly. I write this letter to you to awaken the warrior within you. It’s there. God breathed that inside you. Scripture says that you are more valued than the sparrow, and if they trust that God will feed them, can you? I implore you my dear friend, to throw your being at the heart of God, seek first his kingdom and all other things will be added to you. Life is not over, it’s still beautiful get into the battle my brave friend, brother and warrior.

Don’t Wait Around (Small Relationship Advice)

I can remember being in junior high,

there was a girl,

her name was Molly.

Molly was cute, with brown hair and freckled skin.

Yours truly had a crush on her.

One day after school,

there she was at her locker…

So, something sprung up inside me “I should ask her out”.

And so I did.

And she told me, without even looking at me. “I have a boyfriend, but you’ll be the first to know.”

At first I was crushed, but when she said you’ll be the first to know there was a sense a hope. Maybe she would come around I thought.

But as time went on, nothing changed.

The lesson was, don’t allow yourself to be someone else back up plan. Have the fortitude and respect for yourself to know that you deserve better. And find someone that actually wants to be with you.

Rethinking Success-For The Better

How do we define success?

How we answer this question, is more vital than we think or have allowed ourselves to believe. It is also imperative to our health and well-being. When we think about success, we typically think about how much money we have in the bank, how padded our retirement will be. The degree of education we have, where we live, who were married to. Even the level of health we have. These things, though they do carry a certain level of importance. I don’t believe that they are actually the most vital measure of success.

Think about it, does money actually make us happy? It can, but only for a fleeting moment. For me personally, I know that there is a huge propensity to always want more and more of it. And I know that I can’t take it with me when I die. Further, money cannot truly provide a real sense of joy and inner happiness. Even with a ton of money it can still make a person completely miserable. Unless you have a sense of peace and joy that is beyond financial comfort.

The same goes even with education, you can be the educated most of human beings. But if your education causes you look down on others who are less educated. Has it really done that much for you? You can the highest levels of education, and in the quiet of your mind and soul still compare yourself against someone one else. In my life, I hold having a college degree as a big deal. Because I was told that I was never smart enough for it, and I had to fight my way to get there, as well as finish.

The things that deem as being a success, might actual be doing us more harm than good. Just look at people around us, most of us hate the jobs we have, most don’t feel like we have discovered any sort of real passion and passion. We’ve been fed so many lies about what success actually is.

You know what I’ve come to realize though? While none of the things that I mentioned above are bad. I have come to the understanding that, if I can go through out my day, knowing that I’ve helped someone, woke up and managed to control the thoughts that come in and out of my head. I’ve succeeded, its been a good day! Do I stop striving an aiming up? No, but sense I’ve taken on this new perspective on success in my own life. I’ve been able to breath a lot easier and go through my life with so much more joy and peace.    

How To Be A Bad Ass Human Being

Tips For Being A Bad Ass Human Being

Human beings are amazing, we can do so much with our bodies and minds every single day of our lives. My own existence is something that I simply do not thank God for on a regular. Rather I piss-moan and groan about how much my life sucks. Anyone who knows anything about my own story, knows that the deck was stacked against me. And yet, by the grace of God I have gone onto obtain multiple degrees and certifications. Even though doctors told me I would always be dependent on others, and even though educational professionals told me I didn’t have what it took to attend university. We human beings have forgotten how beautiful our own existence is, we have lost sight of the fact that we can all be bad asses in our own right. So what are a few tips to become that person?

Finding Your Mental Resolve: We don’t like to hear this, but the only way we truly find our resolve, the only we become mentally and emotionally tougher is through hardship and challenges. Some of us have had very tough and painful lives, and because of that, it’s easy to feel defeated and buried under the ashes of life. Yet, we have forgotten that we can rise from those ashes. I am not always a believer of pulling up oneself by their boot straps. Though, at times in life, you will have to do that. Much more I am a believer of being shaped and allowing yourself to be molded and mentored by other people who truly care about you. I am eternally grateful that God gave me parents who not only told me I was strong, but showed me I was. I am also thankful that God let me experience all the suffering in my life. I’m thankful that he led me through the valley of death. Because it made me who I am today. Find the good in your life, face the darkness in your own life, try more and more every day, to not listen to the lies in your mind any longer. Suffering comes for us all, in different ways throughout our lives. As such, we should always have our armor ready when the fight comes, in the name of not being blindsided by an attack. Some of us are so comfortable with our own comfort, that the slightest bit of adversity sends us packing. Learn to be steady and calm and adversity, because the storm always passes.

Enjoy Solitude: This is art form, I have been working on more and more in my life. I have come to love solitude, by myself and without distraction. Some of us are afraid to be alone with our own thoughts, have to always be doing something. But there’s really happiness and healing, in being able to be still, and see what resonates inside us. It’s in the stillness of the night, that we can discover who we are, what we have to work on and where we want to go. It was in the solitude of my heart, that I discovered that the creator of the heavens and earth was drawing me to himself, he was making me a new creation, a strong soldier and a seeker of how he sees me. Get comfortable being your own company, interact with the thoughts in your own mind, no matter how dark and uncomfortable they may be. Get a journey, write things down, it could be a method of healing from trauma, holding yourself accountable for goals. Our biggest problem in society, is that we are constantly seeking information outward and we are not spending enough time discovering who we are and how bad ass we can be. Start seeking solitude today, even if you’re a parent, find time early in the morning, or even for a few minutes before bed. Take stock of your life. You will be better because of it.

Listen To Others: I’ve always been more of a listener than talker, and I honestly like it that way. Listening to others should be pretty self-explanatory, but some of us talk so much and we don’t listen enough. When we do that, we miss out on being teachable. We miss out on exercising empathy and compassion for others, who might be in a time of darkness. With utilizing our ability to listen, rather than speak. We have a better chance at showing others a light covered path to hope.

Become The Healthiest You: This will look different for each person, because we all have different abilities. But we all could be a bit, or even a lot more healthier in our lives. As a personal trainer and nutrition coach, I haven’t worked with a lot of people with different abilities. The reoccurring theme, with working with a wide variety of clients, is that if you commit to the process of getting better each day, with proper nutrition and exercise you will see results. Yes, things take time, but that’s the beauty of it, in that we get to embrace the process and see the small changes gradually. The instant gratification that we crave with our health and the rest of our lives isn’t real. Nutrition and fitness are two categories of life that have been made overall complicated. As a whole, I feel that quite a few us could do much better, by saying no to a lot of processed foods, and yes to more water, protein, and some fruits and vegetables if you like them. (I’m not convinced that we need them and function fully).
In terms of fitness, you don’t always have to have a gym membership. Nor do you have to go balls to wall for hours on end. I did CrossFit for a number of years, and as much as I love it. Not all your workouts have to be that intense to get a good workout in. If you’re new to the world of fitness, I suggest taking a few 10 minute walks every day, (gradually work your way to a jog) while starting to master the push up (even if it’s on your knees) along with other variations and challenges to pushups as you go along. And mastering a good squat form- in different variations, weighted and single legged squats. Because we all do it every day. Just with those exercises alone, you can do a lot with those daily movements and habits.
Next, get yourself a pull up bar or some rings, you really can build a lean strong body with these two pieces of equipment. With rings, you can utilize harder variations of push- ups, dips, planks and bridges to build the core- etc.
Kettle Bells are great too, especially the swing, because it’s a total body movement that even throws in cardio at the same time.

What Defines You?

How we answer this question, is very vital. For it it makes up a vast majority of how we function in daily life.

First, what are we NOT?

We are not our disability, if you have one.

We are not our mental illness, if you have one.

we are not our grade point average.

We are not our sexual orientations.

We are not our political party.

We are not our past failures.

We are not our success.

We are not our body image.

We are not our relationship status.

On and on we could go.

Our core identity, is founded upon being made in the image of God (Genesis 1). Now I know that some might take issue with that. But for me, it wasn’t until I discovered how much God loved me, that I ever truly knew peace. It was then that I stopped the endless hunt for something to fill me up or satisfy me. Money is a blessing, but that can never bring us lasting satisfaction.

All of us, are on a hunt to find what gives us a sense of worth and purpose. For some of us, that’s children, status, money, sex, power. The reality is though, that may satisfy us for a while, but those things will all leave us empty when they are taken from us. And they will be!

Knowing that our worth, value, purpose and self-esteem is founded upon the Lords image in us. Thus allows us to be able to not only realize our true selves, but to see ourselves in  healthy and balanced way. It also allows us to endure the hardest of circumstances, knowing that God is in control and our truest satisfaction and joy.

And until we come to that understanding, we will be, as  saint Augustine says: Restless until it (our hearts) rests in you.

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Cerebral Palsy. Body Image and Internal Healing.

I’m starting to see a correlation between cerebral palsy and body image, this correlation stems from being in contact with numerous people who live with cerebral palsy through social media. In this particular regard, I’m speaking about having a negative self image.

You may look at the image of me below, and not think that I am “fat” all, but when I look at myself. That is what I see.

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When I look at the sides of my stomach, I think “Ugh gross” then I start thinking or obsessing over what I eat and upping the intensity of my daily workouts. Which is not a bad thing at all. It is a problem though, when you are in the middle of your workout and you can’t stop dwelling on how disgusting you feel and look.

I posted that above photo on instagram a few weeks ago, lots of people said that I looked great, or that we all had those feelings, or even “that’s just skin!” The comments were heart warming and helped me to think more positively.. For awhile, but then I would find myself in the downward spiral of self destruction and sabotage.

My workouts have consisted of lots of burpees, probably two-four hundred every single day. Along with Kettle and Bar Bell lifting. I sweat a lot, recover well but am utterly hungry the rest of the day.  Nor am I afraid of eating my carbs, protein and Beer… My one beer after work.

The engine is constantly stoked, and I’m constantly pushing my mind and body.. But there is this area of my life, that needs change. I’m tried all the thought stopping methods, all the positive affirmations etc. And still nothing helps the crap shoot stop.

After CF today, I came home, ate and then went to wash my stinky self. There I was, looking at my body with contempt. And then I thought, “this has to stop!” Truly the only thing that gets me through life is my faith. So after redirecting my thoughts back to it, I whispered to God:

“God, you don’t want me to hate my body, I know that. Help me to see myself differently, as you do.” At that moment, something clicked on inside of me. I’m not saying that you have to do, as I do, that is something that you have to decide and work through for yourself.

What I am saying though, is that these destructive thinking has to stop, or at least be put in its rightful place. A vast majority of therapists would saying that working out is killing me, and steer me away from it as they would most addictions. But I don’t think that that is the end all be all solution.

Yes, some things might need to change, or pause. But this is less a physical issue, and more a mental, emotional and spiritual issue. And until those issues heal, nothing we change the way we long for.

So! We have to understand that this is going to be a long journey, with plenty of ups and downs and twists and turns. We have to accept where we are at. I know that this is something that will not want to be heard, you might spend lots of time in a wheel chair, and be on lots of meds. Okay, we can work with that, the fact is that we cannot give up.

There are plenty of exercises that can be done from a seated position, plenty of ways to even build stamina too. I should get on making videos regarding these topics. Yet the biggest component is learning to take care of ourselves from a place of love and not so much a “I have to” but an “I want to” there’s a huge difference.

Change your forward thinking: Think less on your image, and think more about prolonged health, mobility, strength and focus. So that we can be the strongest version of ourselves, not so much for ourselves but for others.

The internal healing is more tangible than we believe, more closer than we think. Much like any medicine though, it takes time for the benefits to show up, but rest assured. Through discipline and diligence change will come.

Blessings!

-Brandon

 

 

 

 

The Lies I Believe And The Power of Ephesians

Contrary to popular belief, or how social media my portray I don’t wake up with a smile on my face all the time. In fact, some mornings I wake up and it seems as though, there is a spiritual war going inside me. A war against regret, doubt, shame, hopelessness and so much more.

The lies I believe:

You’re not good enough

you don’t have what it takes

nobody actually cares

no women will ever want you

you’ll never be all that you dreamed of being

God hates you

Just give up.

There’s more lies in there I’m sure, but you get the point and maybe you can relate. Sometimes I’m not even sure how these thoughts enter my mind. I could just wake up that way! Wake up feeling like I’m in a fight for my life, my mind, my eternal destiny. I have to be reminded that I’m not hopeless, that the God of the university is for me and on my side. His eyes are ever upon me. The one thing that has caused me to hold on and fight back against all these thoughts, is the love letter of Ephesians. I could easily copy and paste the entire 6 chapters in this blog, but I think I will settle for Eph 1:3-14

eBlessed be fthe God and Father of our Lord Jesus Christ, who has blessed us in Christ with every spiritual blessing gin the heavenly places, 4 heven as he ichose us in him jbefore the foundation of the world, that we should be kholy and blameless before him. In love 5 lhe predestined us2 for madoption to himself as sons through Jesus Christ, naccording to the purpose of his will, 6 oto the praise of his glorious grace, with which he has blessed us in pthe Beloved. 7 qIn him we have rredemption sthrough his blood, tthe forgiveness of our trespasses, uaccording to the riches of his grace, 8 which he lavished upon us, in all wisdom and insight 9 vmaking known3 to us the mystery of his will, naccording to his purpose, which he wset forth in Christ 10 as a plan for xthe fullness of time, yto unite all things in him, things in heaven and things on earth.

11 In him we have obtained zan inheritance, ahaving been predestined baccording to the purpose of him who works all things according to cthe counsel of his will, 12 so that we who were the first to hope in Christ might be dto the praise of his glory. 13 In him you also, when you heard ethe word of truth, the gospel of your salvation, and believed in him, fwere sealed with the gpromised Holy Spirit, 14 who is hthe guarantee4 of our iinheritance until jwe acquire kpossession of it,5 lto the praise of his glory.

I can think of no other writing in the world, that makes my mind and soul come alive in this way. I can think of no other spiritual or religious text that makes me want to put on my armor, grab my brave heart sword (metaphorically speaking) and start slaying these lies in my head. Because Christ has overcame it all for me. He has done the same for you, so that you no longer have to be chained to these crippling thoughts any longer.

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