March is cerebral palsy awareness month, I’ve made a few posts on FB but I thought that a full-length post would be good as well. I have lived with cerebral palsy (cp) for 30 years now. Yes, I’m 30 years of age, but I don’t feel it or look it. For that, I can thank the genetics that is in me. Cerebral Palsy is a condition that I have, not who I am.
Cerebral Palsy may be an extension of myself, but it is not who I am. First and foremost I am a child of God, who is loved from the earth to the heavens. This is where my identity lies. God knew my small frame long before time began, he wonderfully made me and gave me worth and dignity.
Having cerebral palsy then is a way that he has gifted me to reach out to others. It has allowed me to empathise with those who feel lonely, hurt and rejected by society. I can honestly say that if I didn’t have cerebral palsy, I probably wouldn’t have as big as a heart for people as I do now.
If anything, I probably would be more selfish and self-focused than I already am. That being said, there are many dark days that come with having this condition. There are many days that I wish I was different or like everybody else. Meaning that I wish I could run, walk and sprint. There are days when I cry out to God wishing things were different.
In these moments of self-pity and feeling of helplessness, I ask the “what if?” and “why me?” questions. We all ask these questions, so to an extent its okay, God can handle these questions. Cerebral palsy is in no way easy to live with, it has taken me quite a long time to be at peace with myself, God and others.
The biggest truth that I can leave you with is that God loves you and created you with passion and purpose and no one can take that from you. People may not understand what we go through, they may even make fun of how we are. But I fearlessly proclaim that you’re loved beyond anything you could ever long for. Even in the times when you feel most alone, the most rejected the most misunderstood you’re loved.
I’ll be honest, there have been times where I have wanted to die. Just to be free from this body full of scars, but some how God keeps this smile on my face. But I say again, you are loved . Never give up the fight. Chase your dreams. Don’t be afraid to wear your heart on your sleeve, be who you are.
Another truth I submit to you is this, you are not a burden. If people do not make time for you, if they do not take the time to get to know you. That is merely a reflection of them and has nothing to do with you. Futher more, do not be afraid to love, do not be afraid to speak hope and encouragement. I truly believe that we can be the change we want to be in the world.
It may seem like you get nothing back in return, but as it is quoted in the movie Gladiator: “What we do in life echoes in eternity”. Do not shy away from pushing yourself physichally, I have been doing Brazillian Jiujitsu for almost 6 years and CrossFit for almost 2-3 years. With both of these elements in my life, my body has never been stronger. Even when doctors told me I wouldn’t be able to do much on my own, even when teachers told me I wouldn’t amount to much. It is by Gods grace I am who I am.
The same reality can be present in your or own life, you just have to take that small step forward. That might require asking for help, swallowing your pride and letting others be your teacher. It might require you sitting down and discovering your dreams and who you are as a person. Regardless, you can rest assured that there is no glass ceiling over our heads preventing us from conquering the obstacles that stand in our way.
Be well my friends.